Downloadable resources that will help your practice and patients learn more about alpha-1
Grifols is committed to partnering with healthcare professionals, providing the alpha-1 healthcare community with the resources needed to make a difference in patients' lives.
Order your free AlphaID™ screening kits
We've made it simple for you to request AlphaID. Submit the online form and you will receive your screening kits within 5 business days.
Access AlphaID results
By visiting the MyAlphaID portal, you'll have access to your patients' confidential test results when an email is provided. Office staff may also request secure access to the portal.
Enroll patients in the PROLASTIN DIRECT® program
PROLASTIN-C LIQUID® (alpha1-proteinase inhibitor [human]) is ONLY available through the PROLASTIN DIRECT program.
Request a representative
If you would like further information on PROLASTIN-C LIQUID and how it helps treat patients with alpha-1, please request to meet with a Grifols alpha-1 specialty representative in your area.
Alpha-1 Foundation Genetic Counseling Program: physician brochure
The Alpha-1 Foundation Genetic Counseling Program provides free guidance on testing and diagnosis of alpha-1 for physicians and other healthcare professionals.
The following resources are designed to help your patients learn more about alpha-1. Each brochure is downloadable.
What is Alpha-1
Contains helpful information on what patients need to know about alpha-1, how alpha-1 is inherited, and who should be tested for alpha-1.
Am I an Alpha-1 Carrier?
Educates patients on what it means to be an alpha-1 carrier and the symptoms associated with alpha-1. It also provides a list of organizations and services that help support patients with alpha-1.
Alpha-1 Foundation Genetic Counseling Program: patient brochure
Offers patients information on alpha-1 and explains how genetic counselors can provide support and guidance regarding a diagnosis of alpha-1 and what that diagnosis can mean to family members.
Alpha-1 Antitrypsin Deficiency: It's All in the Family
Explains to patients how alpha-1 is inherited, the importance of family members being tested, and how a genetic counselor can help advise family decisions regarding alpha-1.
Alpha-1 Antitrypsin Deficiency: A Guide for the Recently Diagnosed Individual
Provides patients recently diagnosed with alpha-1 a comprehensive look at what they need to know with regard to what alpha-1 is, available treatment options, and certain lifestyle changes they may need to make.
Patient support organizations
The following organizations can provide patients with additional information on alpha-1.
AlphaNet has one mission—to improve the lives of individuals affected by alpha1-antitrypsin deficiency. As a not-for-profit organization that is governed by, employs, and serves patients with alpha-1, AlphaNet is uniquely able to develop and offer programs and services based on a very personal understanding of how alpha-1 affects the lives of patients with alpha-1. In keeping with this mission, AlphaNet provides a wide range of specialized programs and services designed to meet the specific needs of the patients with alpha-1 it serves.
The Alpha-1 Foundation is the only national organization dedicated to developing a cure for alpha-1 and to improving the quality of life for patients and their families. Acting as a patient advocate, the foundation helps the alpha-1 community better connect with one another—strengthening the support and care networks they need.
Video resources for you and your patients
View video of Dr. Jeffrey Miskoff, pulmonologist
View video of Corinne Young, nurse practitioner
View the MOA video
See the effects of alpha1-antitrypsin deficiency.
IMPORTANT SAFETY INFORMATION
PROLASTIN®-C LIQUID is an alpha1-proteinase inhibitor (human) (alpha1-PI) indicated for chronic augmentation and maintenance therapy in adults with clinical evidence of emphysema due to severe hereditary deficiency of alpha1-PI (alpha1-antitrypsin deficiency).
Limitations of Use
- The effect of augmentation therapy with any alpha1-PI, including PROLASTIN-C LIQUID, on pulmonary exacerbations and on the progression of emphysema in alpha1-PI deficiency has not been conclusively demonstrated in randomized, controlled clinical trials
- Clinical data demonstrating the long-term effects of chronic augmentation or maintenance therapy with PROLASTIN-C LIQUID are not available
- PROLASTIN-C LIQUID is not indicated as therapy for lung disease in patients in whom severe alpha1-PI deficiency has not been established
PROLASTIN-C LIQUID is contraindicated in immunoglobulin A (IgA)-deficient patients with antibodies against IgA or patients with a history of anaphylaxis or other severe systemic reaction to alpha1-PI products.
Hypersensitivity reactions, including anaphylaxis, may occur. Monitor vital signs and observe the patient carefully throughout the infusion. If hypersensitivity symptoms occur, promptly stop PROLASTIN-C LIQUID infusion and begin appropriate therapy.
Because PROLASTIN-C LIQUID is made from human plasma, it may carry a risk of transmitting infectious agents, eg, viruses, the variant Creutzfeldt-Jakob disease (vCJD) agent, and, theoretically, the Creutzfeldt-Jakob disease (CJD) agent. This also applies to unknown or emerging viruses and other pathogens.
The most common adverse reactions during PROLASTIN-C LIQUID clinical trials in >5% of subjects were diarrhea and fatigue, each of which occurred in 2 subjects (6%).
Please see full Prescribing Information for PROLASTIN-C LIQUID.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.