There are many other people who are on the alpha-1 journey, and many people who work to make life better for people with alpha-1—even searching for a cure. Meet the support organizations making a difference in the lives of people with alpha-1.
“My AlphaNet Coordinator was my lifesaver. When I had absolutely no understanding of alpha-1, she took away my fear.”
AlphaNet gives people with alpha-1 skills that can help them achieve a better quality of life. This not-for-profit organization offers free, one-on-one guidance from AlphaNet Coordinators, actual alphas trained to provide disease management, education, and caring support for people receiving PROLASTIN®-C LIQUID.*
Your AlphaNet Coordinator will:
Alphas have an organization exclusively dedicated to finding a cure for alpha-1 and to improving the lives of people affected by alpha-1 worldwide. The Alpha-1 Foundation provides programs and services created for people living with alpha-1 and those who support them. Finding an alpha-1 specialist is the first step in making a plan to reach your health goals, and the Alpha-1 Foundation can help you locate the right doctor to manage your care.*
PROLASTIN DIRECT is a comprehensive patient support program for people receiving PROLASTIN-C LIQUID. Get help navigating insurance, starting treatment, and finding support. PROLASTIN DIRECT can also introduce PROLASTIN-C LIQUID patients to an AlphaNet Coordinator, an alpha just like you, trained to provide disease management, education, and caring support for people receiving PROLASTIN-C LIQUID.
A deep dedication to the alpha-1 community is at the heart of the Grifols mission. As the maker of PROLASTIN-C LIQUID, Grifols is proud to apply expertise in plasma science and innovation to support people with alpha-1. The Alpha-1 Foundation has applauded Grifols for its continued commitment to alpha-1 patients, and for its investment in lifesaving plasma therapy. Whether sponsoring conferences and research, providing educational opportunities, or supporting events throughout the year, Grifols will be there for alphas, today and tomorrow.*
Heather, Toya, and Jesus, actual patients
The best way to find your alpha-1 community is to jump right in. Take part in alpha-1 events in your area, join an alpha-1 support group, and look for ways to bring awareness to the search for a cure. When alphas are there for other alphas, opportunities for better health can grow for everyone.
Alpha-1 affects not only those diagnosed, but also the people who care for and support them. Whether you’re an alpha or someone who cares about an alpha, learn strategies to help stay connected, get the help you need, and look after your health.
Important Safety Information
PROLASTIN®-C LIQUID is an alpha1-proteinase inhibitor (human) (alpha1-PI) indicated for chronic augmentation and maintenance therapy in adults with clinical evidence of emphysema due to severe hereditary deficiency of alpha1-PI (alpha1-antitrypsin deficiency).
Limitations of Use
PROLASTIN-C LIQUID is contraindicated in immunoglobulin A (IgA)-deficient patients with antibodies against IgA or patients with a history of anaphylaxis or other severe systemic reaction to alpha1-PI products.
Hypersensitivity reactions, including anaphylaxis, may occur. Monitor vital signs and observe the patient carefully throughout the infusion. If hypersensitivity symptoms occur, promptly stop PROLASTIN-C LIQUID infusion and begin appropriate therapy.
Because PROLASTIN-C LIQUID is made from human plasma, it may carry a risk of transmitting infectious agents, eg, viruses, the variant Creutzfeldt-Jakob disease (vCJD) agent, and, theoretically, the Creutzfeldt-Jakob disease (CJD) agent. This also applies to unknown or emerging viruses and other pathogens.
The most common adverse reactions during PROLASTIN-C LIQUID clinical trials in >5% of subjects were diarrhea and fatigue, each of which occurred in 2 subjects (6%).
Please see full Prescribing Information for PROLASTIN-C LIQUID.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit http://www.fda.gov/medwatch, or call 1-800-FDA-1088.
*This website is provided as a resource only and does not constitute an endorsement by Grifols of any particular content. Grifols does not review or control the content of non-Grifols websites.