PROLASTIN®-C LIQUID and Alpha-1 Resources
If you or a loved one has been recently diagnosed with alpha1-antitrypsin deficiency, we realize you may have some questions. In addition to having conversations with your doctor, the resources below can provide you with the helpful information you need to answer those questions, so you can feel confident that support is here for you.
Alpha-1 patient support organizations
Toll-free: (877) 228-7321
The Alpha-1 Foundation is the only national organization dedicated to developing a cure for alpha-1 and to improving the quality of life for patients and their families. Acting as a patient advocate, the foundation helps those in the alpha-1 community better connect to one another—strengthening the support and care networks they need.
The Alpha-1 Foundation offers a variety of resources for patients with alpha-1 and their family members.
Toll Free: (800) 577-2638
AlphaNet is a not-for-profit health management company providing comprehensive services exclusively to the alpha-1 community via care coordinators who are patients with alpha-1 themselves.