Patient support if you're an Alpha
Get more information on your condition and tools to help you manage Alpha-1.
Get help with insurance and reimbursement.
Prolastin Direct® Patient Services not only delivers PROLASTIN-C when and where you need it, it also provides insurance assistance and support. Call 1-800-305-7881 to get started. Prolastin Direct® Patient Services partners with Dohmen Life Science Services and AlphaNet to offer you clinical, financial, and peer support to make managing Alpha-1 easier.
The following tools help people with Alpha-1 better understand and manage their condition. Check back frequently; new tools are added periodically.
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Big Fat Reference Guide (Registration with AlphaNet required)
Little Skinny Reference Guide (Registration with AlphaNet required)
These are patient support organizations in the United States. To see if there is a local chapter or events are in your area, contact the national organization or ask your doctor.
Alpha-1 Foundation is the only national research organization solely dedicated to developing the means to cure and control Alpha-1 and to improve the quality of life for those with the disorder. Representatives of the Alpha-1 Foundation, medical, and scientific communities guide the strategic program direction and all activities of the foundation. For more information, visit www.alphaone.org or call 877-2-CURE-A1 (877-228-7321).
AlphaNet is a not-for-profit health management company providing comprehensive services exclusively to the Alpha-1 community via care coordinators who are Alpha-1 patients themselves. AlphaNet provides personalized education and support to patients receiving PROLASTIN-C through Prolastin Direct® Patient Services. AlphaNet produces the Big Fat Reference Guide (Registration with AlphaNet required), a comprehensive guide to living with Alpha-1. To learn more, call 800-577-2638 or visit www.alphanet.org.
The American Lung Association can provide information and assistance, especially if you are trying to quit smoking. Their mission is to prevent and fight lung disease through education, community service, advocacy and research, seeking better treatments and cures. For more information, visit www.lungusa.org or call 800-LUNG-USA (800-586-4872).
The American Liver Foundation provides information on prevention, treatment and potential cures for liver diseases. For more information, visit www.liverfoundation.org or call 800-GO LIVER (465-4837).