The following resources are designed to help your patients learn more about alpha-1. Each brochure is downloadable.
Am I an Alpha-1 Carrier?
Educates patients on what it means to be an alpha-1 carrier and the symptoms associated with alpha-1. It also provides a list of organizations and services that help support patients with alpha-1.
Alpha-1 Foundation Genetic Counseling Program: patient brochure
Offers patients information on alpha-1 and explains how genetic counselors can provide support and guidance regarding a diagnosis of alpha-1 and what that diagnosis can mean to family members.
Alpha-1 Antitrypsin Deficiency: It's All in the Family
Explains to patients how alpha-1 is inherited, the importance of family members being tested, and how a genetic counselor can help advise family decisions regarding alpha-1.
Alpha-1 Antitrypsin Deficiency: A Guide for the Recently Diagnosed Individual
Provides patients recently diagnosed with alpha-1 a comprehensive look at what they need to know with regard to what alpha-1 is, available treatment options, and certain lifestyle changes they may need to make.
Patient support organizations
The following organizations can provide patients with additional information on alpha-1.
AlphaNet has one mission—to improve the lives of individuals affected by alpha1-antitrypsin deficiency. As a not-for-profit organization that is governed by, employs, and serves patients with alpha-1, AlphaNet is uniquely able to develop and offer programs and services based on a very personal understanding of how alpha-1 affects the lives of patients with alpha-1. In keeping with this mission, AlphaNet provides a wide range of specialized programs and services designed to meet the specific needs of the patients with alpha-1 it serves.
The Alpha-1 Foundation is the only national organization dedicated to developing a cure for alpha-1 and to improving the quality of life for patients and their families. Acting as a patient advocate, the foundation helps the alpha-1 community better connect with one another—strengthening the support and care networks they need.
Video resources for you and your patients
View video of Dr. Jeffrey Miskoff, pulmonologist
View video of Corinne Young, nurse practitioner
View the MOA video
See the effects of alpha1-antitrypsin deficiency.